The Naked Writer…Exposing My Bell Jar #iiwk14 #invisibleillness

*Personal Post – Writer getting real – Longreads*

Battleground
© All Rights Reserved Kim Koning.

The soldiers are unseen
Camouflaged in skin
Their weapons are lethal
They are elements of torture
They have captured me
Stretched out on a rack
Every muscle screams in protest
Every muscle held in a vice-like grip of agony
My jaw is locked shut
My eyes are blinded as the blades enter
My mouth is slack with pain
My fists tied down, tightly clenched
The torture has only just begun
My body fights to find an inner strength
The needles pierce the back of my neck
I am held in place, too weak to struggle
I try to call out for mercy
I am ready to confess anything
The needles enter my skull
There are hundreds of them
The prison is too bright for me to see
Shadowy figures surround my body
Slowly I feel the needles draining my veins
I try to release the bindings on my limbs
They use my body as a pincushion
I have no more strength to fight
I can feel the weakness take over
My mind tries to fight, to shout
I open my eyes
I stare into blinding white light
The needles in my skull blind me
Bile rises up from my empty insides
I search for the unseen enemy
These faceless soldiers dealing in torment
I open my eyes and see a figure before me
It looks familiar, a faint echo of disbelief
The reflection is myself
My very flesh the rack of agony
I lose hope, I lose the battle against my skin and bone
My body is my battleground, my flesh the enemy torturing me

This is my invisible reality. This is the Bell Jar that hangs suspended over my life. My Bell Jar is: Chronic Migraine. A genetic neurological disorder.

This is not something I speak about often. Partially because it is a fairly invisible illness. Partially because so many people don’t understand what the difference is between headache, migraine and then chronic migraine is. Partially because I do not like admitting vulnerability. Partially because of the inherent shame and guilt I have in having an invisible illness.IMG_3971-0.JPG

But no more shame and no more guilt. No more “invisible” illness. Living life is about embracing all of life, the good and the bad, the strengths and the vulnerabilities. This monster that turns my body into a torture chamber has been my constant companion for the last 18 years and counting. For the last 6 years this companion has become a jealous and possessive monster determined to isolate me from those who truly love me. This monster does not live under my bed or in the cupboard like the Bogey Man. This monster has taken permanent and unwelcome residence in my exploding head.

Migraine is so much more than a bad headache.

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